fghtsmallcell
Well-Known Member
Hi Motoco,
Scan anxiety, That is real!!! Yes he does know about the appt. We are in there every 2 wks. No problem with keeping my husband off topic about the CT scan, one of the side effects of that whole brain radiation is short term memory. It frustrates him to have to keep asking questions that he should already know the answer to. He now just leaves all the medical stuff to me to figure out. As far as reminding the Onc about the CT scan I am not going to remind him. There is a good chance he won't remember either. LOL This really is not funny but I have had to stay on top of reminding this Onc about several things from day 1. I don't know if he is like that with all his pt's or just us because he kinda knows me. This is where I tell you that I work in the medical field. (I knew my husband was in trouble for at least a year before his seizures that almost killed him.) I kept telling him that if he had cancer and did not go to doc now, we would not find out about it until it spread to his brain. He wouldn't listen and that is exactly what happened. We had only been married for 2 years when he was dx. So I hope you can understand that I had to work through some anger issues when this happened.
I think I know which blood thinner you were on that lowered your platelets. Was it Plavix?? I HATE that drug!!!! One surgeon even told me it should be outlawed. There is only 1 situation where it might be appropriate to take and even then only for 1 year. The problem with it is it cannot be reversed. I have worked in surgery for over 20 years and have fought to save many patients lives as a result of that drug. Usually a GI bleed or a bleed in the brain. That drug can and does kill people. I will never forget the man that we had on our OR table with a bleed in his bladder that we could not control. The surgeon finally stopped and left to inform the family that he was bleeding to death and we could do nothing to stop it. The docs that perscribe that drug will always say "we can give platelets to reverse it" I have given a ton of platelets to no avail. My husband is on coumidin and is very easily reversed if needed. The possible pulmonary embolism that can form is more deadly than the risk factors of the coumidin which will help prevent the PE. But if he is truly cancer free he will not need a coumidin.
Yes, he is drinking and eating good. And yes, he seems to be feeling better all the time. He is spending a lot of time outside even if just a few minutes doing things. I will let you know if the new batch is better. He is sleeping less hours now. He was sleeping 10 to 12 hours a day. He was always a morning person that would get up with the sun and he is starting to do that again for the first time in a couple of years. He still claims that he is not sleeping good. The chemo left his skin very tender, fragile and thin. This has left him unable to get comfortable enough for any length of time at night. Regardless of what he says, I believe he is sleeping better. So thank you. We are on the right track with that. But you are right. I need indica and am still working on that.
Yep, I hear you about the cost of all these test. My husband would get an injection of a drug after chemo to stimulate his bone marrow to increase WBC. The cost was almost 10,000 for that one little syringe of liquid.
Scan anxiety, That is real!!! Yes he does know about the appt. We are in there every 2 wks. No problem with keeping my husband off topic about the CT scan, one of the side effects of that whole brain radiation is short term memory. It frustrates him to have to keep asking questions that he should already know the answer to. He now just leaves all the medical stuff to me to figure out. As far as reminding the Onc about the CT scan I am not going to remind him. There is a good chance he won't remember either. LOL This really is not funny but I have had to stay on top of reminding this Onc about several things from day 1. I don't know if he is like that with all his pt's or just us because he kinda knows me. This is where I tell you that I work in the medical field. (I knew my husband was in trouble for at least a year before his seizures that almost killed him.) I kept telling him that if he had cancer and did not go to doc now, we would not find out about it until it spread to his brain. He wouldn't listen and that is exactly what happened. We had only been married for 2 years when he was dx. So I hope you can understand that I had to work through some anger issues when this happened.
I think I know which blood thinner you were on that lowered your platelets. Was it Plavix?? I HATE that drug!!!! One surgeon even told me it should be outlawed. There is only 1 situation where it might be appropriate to take and even then only for 1 year. The problem with it is it cannot be reversed. I have worked in surgery for over 20 years and have fought to save many patients lives as a result of that drug. Usually a GI bleed or a bleed in the brain. That drug can and does kill people. I will never forget the man that we had on our OR table with a bleed in his bladder that we could not control. The surgeon finally stopped and left to inform the family that he was bleeding to death and we could do nothing to stop it. The docs that perscribe that drug will always say "we can give platelets to reverse it" I have given a ton of platelets to no avail. My husband is on coumidin and is very easily reversed if needed. The possible pulmonary embolism that can form is more deadly than the risk factors of the coumidin which will help prevent the PE. But if he is truly cancer free he will not need a coumidin.
Yes, he is drinking and eating good. And yes, he seems to be feeling better all the time. He is spending a lot of time outside even if just a few minutes doing things. I will let you know if the new batch is better. He is sleeping less hours now. He was sleeping 10 to 12 hours a day. He was always a morning person that would get up with the sun and he is starting to do that again for the first time in a couple of years. He still claims that he is not sleeping good. The chemo left his skin very tender, fragile and thin. This has left him unable to get comfortable enough for any length of time at night. Regardless of what he says, I believe he is sleeping better. So thank you. We are on the right track with that. But you are right. I need indica and am still working on that.
Yep, I hear you about the cost of all these test. My husband would get an injection of a drug after chemo to stimulate his bone marrow to increase WBC. The cost was almost 10,000 for that one little syringe of liquid.