Cannabis Oil Users Cafe & Lounge

[Dennise]

re: Cannabis Oil Users Cafe & Lounge

If there are any Queens around here, I appeal to their generosity and ability to change laws. We paupers will write them out, all they need do is sign and seal! Then grant us a piece of land in the "Queendom" big enough and fertile enough to grow all we want legally!

Then go back to your castle and we all live in peace.



( one can dream, eh?)

I like the sound of it.... Queen Canna...

 

[SweetSue]

re: Cannabis Oil Users Cafe & Lounge

Circuit, I'm going to miss you. I was thinking about you today as I was reading an abstract of a study on the very tumors you are holding at bay and the efficacy of cannabis to shrink them. I think you have much to be hopeful for.

And thank you for that thoughtful post on our feeble attempts to get a handle on the therapeutic uses of this plant as we wait for this prohibitionary period to finally come to an end. We need serious research and reputable clinics so we can refine protocols. This often feels like madness.

Be well and don't be a stranger.

 

[SweetSue]

re: Cannabis Oil Users Cafe & Lounge

I have the same smell issues with my wife. In fact, I just ordered some oven cooking bags to put the weed in to decarboxolate. I saw a video of someone using them to eliminate the smell and keep the terpenes in while decarbing. (I also ordered a gallon of glycerin Now I need to see if I can figure out how to make one of those devices that rotate mason jars laying on their sides like the ones on Skunks web page you linked to above. That would be nice to have one that would keep about 6 rotating 24/7.

I've been using the oven bags for a couple weeks now. When you're done decarbing turn the oven off, pop the door open and let it cool like that before you remove from the oven. It gives you a few more minutes decarb time but it also lets the vapors settle before you open the bag.

I was amazed that I no longer have to worry about the odor caused by decarbing. My kitchen butts up against my neighbor's bedroom. That cannabis can get pretty fragrant when you cook it.

 

[Lady Cannafan]

re: Cannabis Oil Users Cafe & Lounge

Thank you, it was great to find a group of people with this common interest. The methods of making the oil, the dosage amounts, application to specific conditions and reporting of the results are all areas where cannabis oil needs more research. The people who are making a living by selling cannabis to sick people should have better guidelines than currently exist. I am very concerned about some of the "caregivers" that I have met in Colorado. I know one who I would not allow to dogsit, much less make medicine.

We really don't know much about how to apply cannabis oil. The informal guidelines that most people use, like the gram a day dose popularized by Rick Simpson, are obviously not based on scientific studies, but have evolved over the last few years to be our defacto standards. I love that most of what has been discovered was found by direct observation, but the treatment/results record is so incomplete that we are still mostly in the dark. When I see someone posting a directive to someone who wants to treat disease, it makes me cringe. Even an experienced doctor cannot diagnose and treat a patient without an examination. Patients will tell you all about their problem(s), like after finding a lump, but not mention that they are 300 pounds overweight, diabetic and treating for emphysema. That person probably could benefit from cannabis oil, but what if the person has very low blood pressure, something that lowers it further could actually kill the patient. There are lots of good reasons that there are laws about doing amateur doctoring, that have nothing to do with any grand conspiracy.

Good luck to the people who are trying cannabis oil against their conditions. If any of the tumor inhibition theories are correct, we should see some positive results. I am trying it against regrowth of a glial tumor, and the tumor has not come back, so I could claim to have been cured, but that would be disingenuous. The surgery or radiation might be what got me here, or the cannabis oil, or the combination of all 3. Healthy skepticism is called for in this situation, but hope can live here too. I look forward to finding out the best way to apply cannabis oil against disease, in the meantime I'll keep making it the way that makes sense to me and taking the dosage that I believe might work.

The highlighted area of your post I could not agree more with. Information on the patient trying to treat an illness is only as good as what they provide.
Research and showing them the options for the disease in question is terribly frustrating and so often hard to call hard fact.

This is something that bothers me terribly lately, that we are reading about things that are so far into the unknown territory.
I am increasingly more hesitant to post anything I find on it, for the very reasons you gave above. We don't know all of the facts of the patient, and we don't know all of the facts of the treatments in regards to cannabis oil. I often leave here feeling awful because there just isn't more that I can do. People have to make their own plan based on what's out there, and there just isn't enough out there.
We can say what worked for me, what worked for him or her....but we're all different people.

I'm at a crossroads with this for sure. I want to help, by providing things I find...but what I find can so easily be discounted because it isn't enough scientific proof.

For myself personally, I will stick to looking into things that come up, providing any documented studies etc., and adding things to the blog where I feel it's useful.
Specific treatments I leave to those who are qualified and confident with their methods.

Thanks for your post, and I feel the same as others, would love for you stay around if possible.

 

[Dennise]

re: Cannabis Oil Users Cafe & Lounge

I too though the same when I read that part... I have read some things here and there that I literally cringed... Being trained as an RN it is really hard not to comment when posts are made not only advising on their own experiences but diagnosing without so much as a how do you do... It is literally beat into you in school and in practice... And some of the folks that pass through here are quite desperate and IMHO it is so very important that the response given is truly for their betterment and not to stroke our own egos......

 

[Curly Beaver]

re: Cannabis Oil Users Cafe & Lounge

Cannafan and Dennise, I am glad to hear you bring these concerns up as I too am fearful that someone really sick is going to stop in and get hooked up with a member providing guidance when he has no business doing so. It'll be a long time before someone comes along as knowledgeable as MOTOCO was but unfortunately, some think they are qualified to carry on because then can make oil, but don't fully understand the mechanisms of action. Most of us read, read, and then read some more but someone with a new cancer diagnosis is apt to read until they find someone or something to put their faith in.

 

[CCOiler]

re: Cannabis Oil Users Cafe & Lounge

.......................All people can do is read the 3 journals and come up with their own protocols, as bad as that sounds it's better then what they have started with. Take Johnnyoilseed for instance, he read & listened to Tim, then he went his own path to rid himself of cancer. Maybe the next person can do this with less oil? We don't know, again it's their call.

 

[Radogast]

re: Cannabis Oil Users Cafe & Lounge

I believe the fact that I, and others, spend so much time scared to offer advice is a good thing.

I view these threads as the discussions of a support group. It would be nice if there were a scientifically informed doctor in the house, but until one shows up we can do our best to offer heartfelt support. Personally, I feel totally unworthy to be here. I know I am blessed to be surrounded by selfless people offering solace, support, and a guidepost to a better future.


I don't place my faith in people as much as I place my faith in the incredible healing ability of nature, both interior and exterior to the human body.

Cannabis is a gift to mankind. I support the use of cannabis on the path to a healthier life. .

 

[SweetSue]

re: Cannabis Oil Users Cafe & Lounge

The fact that we agonize over this suggests we have our priorities straight. I believe we all strive to avoid letting our egos come into play here and we all work hard to understand the mechanisms at work here. Until we end prohibition this is the best we have for now. I'm glad we're cautious.

 

[Lady Cannafan]

re: Cannabis Oil Users Cafe & Lounge

I believe the fact that I, and others, spend so much time scared to offer advice is a good thing.

I view these threads as the discussions of a support group. It would be nice if there were a scientifically informed doctor in the house, but until one shows up we can do our best to offer heartfelt support. Personally, I feel totally unworthy to be here. I know I am blessed to be surrounded by selfless people offering solace, support, and a guidepost to a better future.


I don't place my faith in people as much as I place my faith in the incredible healing ability of nature, both interior and exterior to the human body.

Cannabis is a gift to mankind. I support the use of cannabis on the path to a healthier life. .

Maybe we can sweet talk Dr. Sanjay Gupta into hanging about with us for awhile...if he couldn't answer what comes up, he could certainly find a qualified expert to do so. Ahh...that would be a learning experience, wouldn't it?

Love having you here with us Radogast, you have been very helpful!

I ran into this while I was searching for Medical Marijuana Scientists this morning, just some reading with coffee:

60 Peer-Reviewed Studies on Medical Marijuana - Medical Marijuana - ProCon.org

They have a "Teaching Corner" there that I haven't explored yet.

I don't think this is a competitor site............hopefully won't be perceived that way by the mods. If it is, my apologies in advance.

 

[panacea]

re: Cannabis Oil Users Cafe & Lounge

I Agree Radogast bud. I do consider Cajuncelt and a few other on here as "Cannabis Doctors"(Cannafan,CCOiler,john ,supergroomer , dennise ,sweetsue etc..) . I feel the CCO movement as a Alternative medicine to the other Poison out there has made great leap & strides in the relative short time it has been around. I also feel research is on going in this site as we speak , we know more then we did yesterday and 2x as much as last year thanks to everyone's Documenting, Inquiring, Monitoring, Analysis , Trial& error......AKA Research . Can't wait to see what the remainder of 2016 and beyond brings. So glad to be part of a compassionate cause.

 

[Lady Cannafan]

re: Cannabis Oil Users Cafe & Lounge

Circuit, I'm going to miss you. I was thinking about you today as I was reading an abstract of a study on the very tumors you are holding at bay and the efficacy of cannabis to shrink them. I think you have much to be hopeful for.

And thank you for that thoughtful post on our feeble attempts to get a handle on the therapeutic uses of this plant as we wait for this prohibitionary period to finally come to an end. We need serious research and reputable clinics so we can refine protocols. This often feels like madness.

Be well and don't be a stranger.

No disrespect intended Sue,

I would have to strongly disagree with "our feeble attempts". The amount of time spent researching, reading and finding things relevant to usage, and to what is being asked, is by no means feeble. We do this in earnest, and spend hours on it trying to give information for decisions that can be made based on the information available to us.
The feeble part is the lack of reliable and factual documented information that can be accessed.

 

[Dave Groomer]

re: Cannabis Oil Users Cafe & Lounge

Speaking for myself (as I try to do) I have found for me I will do my best to tell people what has worked for ME. I will try to pass on any good relevant info I can dig up, but I rely on the input of the "experts" (said in quotes) who as far as I am concerned are the people who have researched and treated successfully. John, Cajun, Tim and all the rest that have put their lives in their oil and have done their best to pass it on.

Johnyoilseed. Passing it on and trying to help others.

 

[Curly Beaver]

re: Cannabis Oil Users Cafe & Lounge

Maybe we can sweet talk Dr. Sanjay Gupta into hanging about with us for awhile...if he couldn't answer what comes up, he could certainly find a qualified expert to do so. Ahh...that would be a learning experience, wouldn't it?

Love having you here with us Radogast, you have been very helpful!

I ran into this while I was searching for Medical Marijuana Scientists this morning, just some reading with coffee:

60 Peer-Reviewed Studies on Medical Marijuana - Medical Marijuana - ProCon.org

They have a "Teaching Corner" there that I haven't explored yet.

I don't think this is a competitor site............hopefully won't be perceived that way by the mods. If it is, my apologies in advance.

It is nice having the presidential candidates positions concerning Medical Marijuana listed in one place too.

 

[SweetSue]

re: Cannabis Oil Users Cafe & Lounge

No disrespect taken Canna. It was a statement made more out of the frustration of how research has been tied up by prohibition. We can study the literature and share our experiences but that is so little compared to the funded research that should be going on already. At least now we have research being funded and the results are putting some feet to the flames. I'm proud to be part of the ongoing search for guidance as we make our way through.

 

[Dennise]

re: Cannabis Oil Users Cafe & Lounge

I Agree Radogast bud. I do consider Cajuncelt and a few other on here as "Cannabis Doctors"(Cannafan,CCOiler,john ,supergroomer , dennise ,sweetsue etc..) . I feel the CCO movement as a Alternative medicine to the other Poison out there has made great leap & strides in the relative short time it has been around. I also feel research is on going in this site as we speak , we know more then we did yesterday and 2x as much as last year thanks to everyone's Documenting, Inquiring, Monitoring, Analysis , Trial& error......AKA Research . Can't wait to see what the remainder of 2016 and beyond brings. So glad to be part of a compassionate cause.

But Pan this is the problem... None of the above mentioned are doctors or medical professionals in anyway... some of the listed have used the oil for their own treatment and some have even helped others going on the oil... but some are diagnosing and prescribing what they "think" would be appropriate for others treatment... We cannot do that... it is illeagal and immoral.. I am a registered RN and I in no way am qualified to give someone some of the information the way I have seen it presented here... Again not only is it immoral and unprofessional... it is illegal... All we can do here folks is help people find the information we have gathered and point them in the right direction... they have to make up their own minds on how to proceed... if asked for an "opinion" that is one thing... to give medical advice as though you are a trained professional is simply wrong.... I hope you all have a blessed green day....

 

[Dave Groomer]

re: Cannabis Oil Users Cafe & Lounge

But Pan this is the problem... None of the above mentioned are doctors or medical professionals in anyway... some of the listed have used the oil for their own treatment and some have even helped others going on the oil... but some are diagnosing and prescribing what they "think" would be appropriate for others treatment... We cannot do that... it is illeagal and immoral.. I am a registered RN and I in no way am qualified to give someone some of the information the way I have seen it presented here... Again not only is it immoral and unprofessional... it is illegal... All we can do here folks is help people find the information we have gathered and point them in the right direction... they have to make up their own minds on how to proceed... if asked for an "opinion" that is one thing... to give medical advice as though you are a trained professional is simply wrong.... I hope you all have a blessed green day....

I agree 100%!!! I am not a Dr!!! I am a dog groomer with a reasonable head on my shoulders and a knack for growing. That is why I will only tell you what has worked for me or info that I have gotten from a trusted source (aka Tim, Cajun, Greenleaf, Skunkpharm). People that have been working in the field and have found things that work.

All that being said, we are not Drs. What we tell people has impact in their lives. The good. We all know you can't OD on cannabis. That does not mean that some one (especially some one not experienced with cannabis) can't have a BAD reaction.

I am comfortable passing on my experiences and what I have learned.

 

[Lady Cannafan]

re: Cannabis Oil Users Cafe & Lounge

I am currently working on a disclaimer to add to the first post of this thread that will make sure this is totally covered.

 

[Dennise]

re: Cannabis Oil Users Cafe & Lounge

Perfect Canna... Thank you.......

 

[Lady Cannafan]

re: Cannabis Oil Users Cafe & Lounge

Here is what I propose we add to the first post of the thread:

Important Disclaimer:

We are a support group of Cannabis Oil users.

We are not certified medical specialists or Doctors/Scientists/Professionals in the medical fields.

You must not rely on the information posts on this thread as an alternative to medical advice from your doctor or other professional healthcare provider.
If you think you or your patient may be suffering from any medical condition, you should seek immediate medical attention.
You should never delay seeking medical advice, disregard medical advice, or discontinue medical treatment because of information you have read here.
We often discuss our own personal experiences with using Cannabis oil. We have no way of knowing the true medical history of yourself or a patient that might cause issues with treatment of Concentrated Cannabis Oil. For example, Diabetic patients, or those with Blood Pressure issues, can suffer severe life threatening reactions if treated wrong.
If you are looking for answers, it is up to you to read through the documentation provided and decide what is factual, and what is opinion. We do not guarantee that the information is current or up to date, nor do we guarantee it's validity.
You must complete your own due diligence in getting the answers you seek. We are here to help you do that when we can. We cannot, and will not, make medical decisions for patients.
After you have made your own decision on how to proceed, we highly encourage that you discuss your treatment or regimen plan with the patient, with your doctor, or the patients Doctor, and loved ones who will be involved in the treatment.
What you decide to do from here is your decision and sole responsibility.