SweetSue's Cannabis Oil Study Hall

[Canyon]

I found the straight coconut oil bad but not awful. The mango juice scored about the same.

The mix made 12 caps. I took one at 9:00 and rinsed the beaker out with a few drops of Ever Clear. I cut that with a shot of water and a second cup of coffee.

The few drops of alcohol at 190 proof with coffee gave me just a small kick start I think. About 20 minutes after the first capsule I could say I was feeling the cannabis. It's about an hour now and things are a little more pronounced. It's a nice mellow feeling now. This could work for me.

I am going to do a little yard work and see how I feel in an hour.

Back in an hour,
canyon

 

[Canyon]

The Buzz
Around 10:00 I had a hit from a pipe and another about 15 minutes later. I was at a mild high and I want to get a feel for how caps and a little extra from a pipe will work. So far one hit puts me in a very nice place.

Around 11:45 I took another cap and a hit off the pipe. The two combined gave me gave me what I would describe as a slow motion rush that is fading off to a nice buzz at 12:15.

It is going to take some time to get use to walking around without a pipe or some cones.

All is good here.
canyon

 

[RheinRover]

The CCO journey as started here.
Today I did a wash of 65g and now its all in the freezer doing its winterization. Used 190 proof Everclear and the color came out very nice.
I was planning on just evaporating with a double boiler like I have done before when making dab oil. But this morning I ran out of coffee filters and while at the store they had rice cookers on sale. Excited to try that out tomorrow. Really wish I had an essential oil still since it took me nearly 4 bottles of Everclear to wash everything correctly.
On Monday my sunflower lecithin should be delivered and everything will be turned into biobomb capsules. A batch of 20:1 and 10:1.

Thanks again for all of the great guidance on this thread.

And as I promised Sue, I'll try one capsule in the name of "science" the rest are going to help a dear friend.
Excited to see what the fuss is all about

 

[SweetSue]

You guys..... Make me proud.

I'm at a memorial service for my cousin. She lost that battle with cancer. This won't surprise you at all, but the surviving husband's bonded with my listening ear. It's such a humbling experience to be able to be there for him.

Finding the two of you making the effort takes some of the sting out of losing her. She only lasted three weeks from diagnosis.

Back to the family. Thanks for the smiles.

 

[Mr. Krip]

You guys..... Make me proud.

I'm at a memorial service for my cousin. She lost that battle with cancer. This won't surprise you at all, but the surviving husband's bonded with my listening ear. It's such a humbling experience to be able to be there for him.

Finding the two of you making the effort takes some of the sting out of losing her. She only lasted three weeks from diagnosis.

Back to the family. Thanks for the smiles.

My sympathies to you and your family, Sue!

 

[Canyon]

Costing,

It is about 2:30 now. The wife and I went out for a one o'clock breakfast and some running around. We got back around 2:00 and I opted for another hit rather than another capsule. I am as buzzed as I want to be this time of day.

There is another observation that I like. Smoking or even vaping a lot kind of leaves me drained after a while. Even with taking a hit every now and then, I am not getting any of that. If anything I feel better than I have in a while.

Back to the yard maintenance chores.

Best

 

[KeifKeith]

Gosh guys, I didn't even realize it's already 1:20 AM. I got so wrapped up in this I completely lost track of time. I'm signing off now and getting loaded. I've had this Dark Devil Auto waiting for me to smoke it for the past hour. Lol!

And they call us lazy stoners. Hahaha!

I AM a stoner too, but lazy .. not a chance! You are anything but lazy Sue!

Keith

 

[KeifKeith]

You guys..... Make me proud.

I'm at a memorial service for my cousin. She lost that battle with cancer. This won't surprise you at all, but the surviving husband's bonded with my listening ear. It's such a humbling experience to be able to be there for him.

Finding the two of you making the effort takes some of the sting out of losing her. She only lasted three weeks from diagnosis.

Back to the family. Thanks for the smiles.

Sorry sue, my condolences to you and your family.

Keith

 

[KeifKeith]

Sue,

As we have discussed offline, here is my post (to the world!) concerning the use of CCO to treat my son who is afflicted with Neurofibromatosis. This is not an easy thing for me to post, but that is my little oddity and here I am finally pulling the trigger.

Thank you immensely for offering to assist me with this CCO treatment. It is a bit daunting to direct daily use to another person, even my son, especially my son, it would be easier I was the patient!

Here is a synopsis of Neurofibromatosis (NF) … it is a neurocutaneous syndrome that can affect many parts of the body, including the brain, spinal cord, nerves, skin, organs and just about any of the body systems. NF1 causes growth of usually benign tumors, involving all neuropathic tissues, including the brain. The severity of NF afflictions range from mild to severe, with some kids almost unaffected by NF while others become extremely disabled. Research is pointing toward mutant RNA as the culprit, but it's still really a medical guessing game. In my experiences anyway, Medical professionals don't readily admit that it's untreatable with any current pharmaceuticals or treatments, and push drug trials as treatment. The incision and removal of tumors that impinge upon critical organs is the only treatment that does any good for day to day life, but that has always proved to be a temporary solution.

There are 3 types of NF1, NF2, and Schwannomatosis; NF1 is most common. NF1, aka von Recklinghausen disease, occurs in about 1 of 2,500 births. A small percentage of these children are afflicted with moderate severity, and my son is a member of that subset. NF2 is much less common, about 1 in 25,000 births, and its symptoms include bilateral vestibular schwannomas. These are tumors affecting the nerves that transmit sound and inner ear balance information to the brain. Schwannomatosis is the third and rarest type of NF, and of all the doctors we have visited, none have ever seen a case.

NF1 can be a kind of inherited disorder, or the RNA mutation that causes neurofibromatosis happens spontaneously. In our families, no one tests positive for NF or are asymptomatic, thus the probability is the genetic materials got changed when the sperm met the egg. Symptoms in youth present as café-au-lait spots (birthmarks) on the skin. Indications are if a child has more than five of these birthmarks, docs will investigate other clues that indicate NF1. These signposts are freckling in the armpits and groin areas, neurofibromas (tumors) under, in and on top of the skin. Also present are Lisch nodules, tiny bumps on the Iris. Neurofibromas can be on any part of the body, and most often start occurring at the onset of puberty. NF1 also causes bone problems, including scoliosis, an abnormal curving of the spine. His other tumors involve the lining of the brain (meningiomas) and spinal cord (ependymomas) and the retina in the back of the eye. Seizure activity has cropped up during the past 6 years, but have not presented with alarming frequency. In summary, tumors are the problem, with constant progression and increase in both number and size. Some tumors have required surgical removal due to impingement and location, both for health and for vanity (face tumors really bother him since they aren’t cover-able).

I can describe it in much greater detail if desired, but I think the essence is tumor, spine and nerve pain. I don’t think that MM can cure this RNA problem, it’s literally DNA encoded for life. My hope and desire is to decrease his pain (spinal pain is extreme sometimes) and increase his quality of life. Due to his own fortitude and my vigilance and discouragement, opiates are not part of the picture, in fact he is only on one prescription anti-seizure med and I think he regularly “skips” that as his seizures are seemingly triggered by certain food and lack of rest. He does smoke a joint sometimes, but not too regularly, but he doesn’t mind the buzz of MJ. He would do capsules orally, tincture orally, creams topically and ingest edibles. He won’t do suppositories, he already struggles with defecation problems due to tumors in lower gut and anus.

So what do you think Sue? I was thinking trying him on capsules first.

Should I follow the protocols for dosing as you have them posted? No need to repeat yourself, my memory is still good. Again, thanks for your help Sue, you said to use you but I’m is still not a user of people by nature, but rather like you a giver. NF is rare, but maybe someone else might need this information too one day.

Also, no need to rush a response, this is for his quality of life, not life or death.

Love, Hugs and Prayers to you Sue

Keith

 

[SweetSue]

Thank you for letting yourself be that vulnerable Keith. I understand the angst of being responsible for directing the protocol for your child. Rest assured you can't do any harm, and that should give you comfort as well as courage.

Yes, I'd begin with capsules. if it were me, I'd be going with two different types of capsules, one CBD-dominant and the other THC-dominant, staggered through the day. In my opinion, the CBD would give you the best chance for pain reduction and decrease in inflammation, and I'd probably opt for four or five doses of this a day. I take five a day myself, starting at 9 AM and then take them every 3.5 hours until I take the last dose at 11 PM. It works for me, but I'm up all night. It's recommended that you don't take CBD right before bed. It can interfere with sleep. Find a schedule that works for him. These shouldn't have any euphoria concerns, which allows you to use them more frequently.

The THC I'd dose twice a day. I try to take my second one at 5PM to give the system slowing down by bedtime. This would give you a couple major shots of THC to hopefully get at the business of shrinking tumors. Keep in mind that the CBD strains have THC in them too, just a lower amount, so there'll always be THC circulating through the system, looking for attachment points. If you wanted to add a third THC capsule I'd consider an indica oil with high THC for an evening dose.

Starting at a 20:1 dose I think you're going to get immediate results for pain management. Does he have regular labs done that allow you to check the efficacy of the protocol? If so, and he's getting relief, I'd stay at the 20:1 dose until you have some labs to evaluate. If no labs are forthcoming and he's tolerating the THC dose, consider increasing the THC to 10:1 somewhere around the second week. Keep that in mind when you make the initial batch of capsules. You might want to do a partial batch so you don't have extras left when you increase the cannabinoid load. I'm not sure I'd increase the CBD dose unless he's not getting the relief you want at 20:1. If you go with 5 capsules a day of CBD-dominant you're going to be getting a major dose every day. Make sure you have good reason before you make them more potent.

Add in edibles and topicals as the need arises or as he desires.

We may be breaking new ground here Keith. Let's move forward with great caution. There's a tendency to think more will be better, but they're finding with cannabis that's not always the case. Very often patients respond better to lower doses. I'm hoping he'll be getting regular labs done to keep an eye on how it's going.

I've mentioned it before and I'll say it again now - We're all lab rats here, making our way through the maze as best we can. What a relief that we use a plant that can't hurt anyone.

Alright Keith, it's your volley.

Does this sound like a plan you can be comfortable with?

 

[Canyon]

Keith,

There are a few things that would be good to know about your son. From your post he is OK with trying cannabis as a medication. It would be good to know how old he is, his weight, his general health and any other issues.

You may want to find a CBD source and work the THC up at a rate your son is comfortable with. The CBD should give him some pain relief from the start. My personal thoughts are that he will also see some reduction of inflammation.

Sue is the one who does all the reading. I think of her as a data bank framed in pink flowers. [;>)

My best to you.
canyon

 

[SweetSue]

Costing,

It is about 2:30 now. The wife and I went out for a one o'clock breakfast and some running around. We got back around 2:00 and I opted for another hit rather than another capsule. I am as buzzed as I want to be this time of day.

There is another observation that I like. Smoking or even vaping a lot kind of leaves me drained after a while. Even with taking a hit every now and then, I am not getting any of that. If anything I feel better than I have in a while.

Back to the yard maintenance chores.

Best

So Canyon, it sounds like the koolaid worked for you. Is this something you see yourself adopting for daily use? I'll tell you, I take 2 5:1 capsules a day, one at 10AM and the other at 5PM. Those two capsules keep me at SweetSue speed all day and into the wee small hours of the morning. Occasionally, like you, I'll supplement, but it never takes more than a hit or two before I'm satisfied.

What I like most about this protocol is that I almost never think about smoking or vaping. I even froze my last batch of BioBomb brownies.

 

[Canyon]

So Canyon, it sounds like the koolaid worked for you. Is this something you see yourself adopting for daily use? I'll tell you, I take 2 5:1 capsules a day, one at 10AM and the other at 5PM. Those two capsules keep me at SweetSue speed all day and into the wee small hours of the morning. Occasionally, like you, I'll supplement, but it never takes more than a hit or two before I'm satisfied.

What I like most about this protocol is that I almost never think about smoking or vaping. I even froze my last batch of BioBomb brownies.

Yes I do. Though I have supplemented with smoking some, I like the consistency of a nice level buzz in the background. I did not expect that.

The caps I made were based on actual THC and CBD content. What would you guess the concentration of your olive oil extract, or what you are using now is?

Anyway, I have been running some numbers in my head and based on today, the Bio-Bomb is as effective and efficient as smoking or vaping. I have enough caps left to continue through tomorrow night. After I finish them I will post some comparisons with other methods.

Today was one of those days, for you, that is nice to have in the past. I know you had good thoughts for everyone.

Good thoughts
canyon

 

[SweetSue]

Yes I do. Though I have supplemented with smoking some, I like the consistency of a nice level buzz in the background. I did not expect that.

The caps I made were based on actual THC and CBD content. What would you guess the concentration of your olive oil extract, or what you are using now is?

Anyway, I have been running some numbers in my head and based on today, the Bio-Bomb is as effective and efficient as smoking or vaping. I have enough caps left to continue through tomorrow night. After I finish them I will post some comparisons with other methods.

Today was one of those days, for you, that is nice to have in the past. I know you had good thoughts for everyone.

Good thoughts
canyon

That consistent level is something that took me by surprise too. There's also no drop off at the end for me, just a bit of tiredness along the edge that lets me know it's time to take another. Since I started setting an alarm and taking them on a schedule I don't even get that effect. I just stay level.

The olive oil extraction was 100 grams of the CBD Critical Cure in 500 ml of olive oil. I haven't worked out the particulars yet, but the strain matures with 8% CBD and 5% THC. Those capsules are amazingly effective in treating inflammation, pain, PTSD, anxiety, depression, ADHD, and the list keeps building. My daughter had a chronic sinus infection heal recently! I can't tell you how many runs of antibiotics she's taken in failed attempts to get that sinus problem to heal.

Yes, it was an emotionally draining day, but the opportunity to be able to be the listening ear was my way of paying forward the care this community showed me in my journey through grief. It gave him such comfort to just talk and share stories. Typically, at funerals I keep to the background. I find my practical approach to death is often disconcerting to others, so I lay low. Today I did the exact opposite.

I seem to have finally stopped crying. Good, time for bed.

Good night all

 

[RheinRover]

Good Morning!
Sorry to hear about your cousin, sending good thoughts and peace your way Sue.

Filtered out my wash this morning, have about 2.5 liters I need to reduce down. Really happy I picked up this rice cooker, much faster than the home made double boiler I had been using.

Canyon: I can relate when you say you feel drained after smoking or vaping all day. I was around a 3-4g a day vaper/smoker, but when I went on vacation I had to go 10 days with nothing. First time in over a year I had gone that long. It made me sick, almost to the point of vomiting. I had no appetite, the chills. Now since being back from holiday I have tried a more micro dose approach which has worked wonders. I'm vaping less but getting better results especially with my nerve pain.
Thanks for your review of the biobomb the more I read the more I think this might even be a good viable treatment for me. Once I build my reserves up I'll have to make some more oil for myself and really give it a try.

Have a great day everyone!

 

[SweetSue]

Good Morning!
Sorry to hear about your cousin, sending good thoughts and peace your way Sue.

Filtered out my wash this morning, have about 2.5 liters I need to reduce down. Really happy I picked up this rice cooker, much faster than the home made double boiler I had been using.

Canyon: I can relate when you say you feel drained after smoking or vaping all day. I was around a 3-4g a day vaper/smoker, but when I went on vacation I had to go 10 days with nothing. First time in over a year I had gone that long. It made me sick, almost to the point of vomiting. I had no appetite, the chills. Now since being back from holiday I have tried a more micro dose approach which has worked wonders. I'm vaping less but getting better results especially with my nerve pain.
Thanks for your review of the biobomb the more I read the more I think this might even be a good viable treatment for me. Once I build my reserves up I'll have to make some more oil for myself and really give it a try.

Have a great day everyone!

I'm glad you reset your tolerance levels, although vacation wasn't the best time to do that, was it? Been there, done that. I was as surprised as you sound at the effectiveness of a lower dose. It sounds so counter-productive to us, doesn't it? I'm still adjusting to the less-is-more mindset one needs to adopt when dosing cannabis as medicine vs using it recreationally.

Interestingly, since I reset my own system earlier this year I've obviously increased my consumption levels, but I'm not seeing the same indicators that I'm building tolerances again. The big difference is that I'm now on a personal regimine of five CBD capsules and two THC capsules a day. I'm wondering how much that protocol is doing to keep my tolerance levels under control? By now I should be seeing some signs of tolerance concerns, so this fascinates me.

 

[KeifKeith]

Thank you for letting yourself be that vulnerable Keith. I understand the angst of being responsible for directing the protocol for your child. Rest assured you can't do any harm, and that should give you comfort as well as courage.

Yes, I'd begin with capsules. if it were me, I'd be going with two different types of capsules, one CBD-dominant and the other THC-dominant, staggered through the day. In my opinion, the CBD would give you the best chance for pain reduction and decrease in inflammation, and I'd probably opt for four or five doses of this a day. I take five a day myself, starting at 9 AM and then take them every 3.5 hours until I take the last dose at 11 PM. It works for me, but I'm up all night. It's recommended that you don't take CBD right before bed. It can interfere with sleep. Find a schedule that works for him. These shouldn't have any euphoria concerns, which allows you to use them more frequently.

The THC I'd dose twice a day. I try to take my second one at 5PM to give the system slowing down by bedtime. This would give you a couple major shots of THC to hopefully get at the business of shrinking tumors. Keep in mind that the CBD strains have THC in them too, just a lower amount, so there'll always be THC circulating through the system, looking for attachment points. If you wanted to add a third THC capsule I'd consider an indica oil with high THC for an evening dose.

Starting at a 20:1 dose I think you're going to get immediate results for pain management. Does he have regular labs done that allow you to check the efficacy of the protocol? If so, and he's getting relief, I'd stay at the 20:1 dose until you have some labs to evaluate. If no labs are forthcoming and he's tolerating the THC dose, consider increasing the THC to 10:1 somewhere around the second week. Keep that in mind when you make the initial batch of capsules. You might want to do a partial batch so you don't have extras left when you increase the cannabinoid load. I'm not sure I'd increase the CBD dose unless he's not getting the relief you want at 20:1. If you go with 5 capsules a day of CBD-dominant you're going to be getting a major dose every day. Make sure you have good reason before you make them more potent.

Add in edibles and topicals as the need arises or as he desires.

We may be breaking new ground here Keith. Let's move forward with great caution. There's a tendency to think more will be better, but they're finding with cannabis that's not always the case. Very often patients respond better to lower doses. I'm hoping he'll be getting regular labs done to keep an eye on how it's going.

I've mentioned it before and I'll say it again now - We're all lab rats here, making our way through the maze as best we can. What a relief that we use a plant that can't hurt anyone.

Alright Keith, it's your volley.

Does this sound like a plan you can be comfortable with?

Hi Sue,

I hope the day is new, bright and shiny for you! Putting grief aside is one tough nut to crack, but I think you did a really righteous thing being a ear for your family. Sometimes that's all a freshly grieving person needs, an ear to listen to old stories and to reminisce.

I am composing a CCO production and dosing plan, and will kindly ask for your evaluation when it is completed (this week). I hope to minimize the amount of your time consumed; folks with cancer need more and immediate help. I was thinking it might be more useful to try and lump together most of the production and dosing questions and information in one post. Also, as I experienced when I started researching this matter, it might make it easier for others to locate and separate social thread banter from medical CCO thread conversations. I do like reading about folks lives and challenges, but I assume some people might desire the "meat and potatoes" of MM and CCO assistance.

Thank You Sue!

Keith

 

[KeifKeith]

Keith,

There are a few things that would be good to know about your son. From your post he is OK with trying cannabis as a medication. It would be good to know how old he is, his weight, his general health and any other issues.

You may want to find a CBD source and work the THC up at a rate your son is comfortable with. The CBD should give him some pain relief from the start. My personal thoughts are that he will also see some reduction of inflammation.

Sue is the one who does all the reading. I think of her as a data bank framed in pink flowers. [;>)

My best to you.
canyon

Hi Canyon,

Thank you also for you contribution and interest in CCO treatments. Sue is an awesome human, I hope to know her better over time.

I did omit a few of his personal numbers from the post, thinking I didn't want to identify him publicly, and that should be his own choice. He is OK with sharing whatever Dad thinks is OK, which makes it worse than if he would give me implicit limits or direction. I'm his Dad, I understand the deference, as I would to my own father (I had good parents). I've tried to encourage him to become in charge of his own life since early teen years, he has had a heavy load to carry and has had so many tough choices to make. He is now 31 years old, married with 3 healthy children with no signs of NF in our grand-kids. He has a career, works full time, and is the sole bread winner for his family of five. I always encouraged him to try and life a fulfilled life, and he has not let NF dictate limits. He decided to stop the medical madness about 8 years ago, and just lives with it. He has no mainstream medical treatments anymore, he decided he was done with dangerous drug trials. No Docs, no labs, no meds, he just uses bad ass brute force and toughs it out. Very inspiring and so sad to see as a parent, and it makes me want to help all over, again and again, a recurring emotion for almost 30 years. I accepted he must live with it 24/7 and must make the hard medical choices presented to him. He is average height, below average weight, but the BMI index is hardly accurate in all humans IMHO (I'm fit at 6ft, 160lbs, but too thin on the BMI index). He is otherwise "healthy", but healthy isn't a word ever used to describe his status by MDs. He has so many tumors, he is a walking ball of pain, Walking may become a problem in a few years as the spinal tumors are growing and impinging upon his lumbar nerve roots. His waking up pain is really bad, almost more than I can bear to watch when he sleeps at our home. The Upside is his attitude and fortitude, both are so very inspiring to me.

Keith

 

[Canyon]

Keith, Sue,

The social side of meat and potatoes.

Keeping your questions and thoughts organized in a single post is probably best when you need input on specific material.

Filtering out the social side of any of Sue's threads would be a chore if you were reading start to present. There really is a need for a way to store some of the information that gets lost in old posts.

Shortly after I joined the site I suggested using OT for Off Topic at the top of posts. It did not catch on. After a while you get to know people here and get up to speed on threads.

Back on topic and more important maters.

I am glad you posted the updated information. There is a lot of difference in what someone would be comfortable suggesting as a treatment for an adult than a child.

Another question that I hesitate to ask and understand if you decline this one, are you in a state that you can get access to legal cannabis, medical or recreational? Can you grow your own? Put another way, do you have access to what you need?

I am impressed with how well your posts are organized. The thought you put into them shows. I mostly ask questions. Sue is the one who finds the answers.

Best
canyon

 

[Canyon]

Bio-Bomb, Day Two

By the end of last night I had taken five caps and probably less than a gram of bud. Near the end of the night I was hitting the pipe more than earlier in the day. It was enough to make me question how well the caps were going to work out.

This morning I decided to just go with it. I intended to take the seven caps I had left and all the bud I wanted. It is about 9:00 and I took the fifth cap around 8:00. I will probably finish off the night early without taking any more caps. The bud consumption will be about half again more than yesterday. It was a good day.

Some experimenting with frequency and strength should further reduce the need to smoke or vape regularly.

I want to cover a few more things in another post. Tomorrow I am driving a friend to the next town to catch a train. That will take up most of the day. Hopefully tomorrow night I can post more.

For now it is safe to say that I will miss the Kool Aid when it is gone. I even inventoried what I have that can be dry sieved. It is not an abundant amount. However it should be enough to make it worthwhile.

Best