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Here is another poem from my first love. If you haven't seen me write about her before she is an amazing, strong person. She has lost her ability to speak or move much at all. She volunteered to have 6 holes cut into her skull that lets the Doctors tickle parts of her brain so that she may speak and move better. It worked for a while, but doesn't help much any longer.
She has an Ipad that she can write on. Here is her latest poem.She is my age.
Tweaking
(That is not what Mylie Cyrus does is it?
I had become more difficult to understand - stuttering and slurring almost every word
I went to my neurologist so he could work his magic so my voice could at last be heard
My movement through stages of this affliction has been relatively slow-that’s the good news
For there are so many suffering from the same disease who would like to be in my shoes.
He turned me off and back on a number of times – to determine the best settings perhaps
When he finished – Wow, my head was really throbbing as a result of his numerous “zaps”.
I left the exam room reeling like someone who had a close encounter with the electric chair
But eternally glad he can “fix” me with a tweak here and there and not even mess up my hair
What we can endure always amazes me and is somewhat comforting I must say
To know that our bodies and our minds are resilient enough to bounce back in a day.
I am lucky to live in a time when I can benefit from all of the miracles of modern medicine
Rather than living some time ago, well aware how difficult that would have been.
I ‘m just going to take life one day at a time, relishing every minute like it was my last
Cause it is true that as we grow older, the days seem to fly by, going way way too fast
I can barely finish reading the obits, just to make sure my name is not listed there
Before the day is over and gone, and I sit shaking my head and muttering “where”
She has an Ipad that she can write on. Here is her latest poem.She is my age.
Tweaking
(That is not what Mylie Cyrus does is it?
I had become more difficult to understand - stuttering and slurring almost every word
I went to my neurologist so he could work his magic so my voice could at last be heard
My movement through stages of this affliction has been relatively slow-that’s the good news
For there are so many suffering from the same disease who would like to be in my shoes.
He turned me off and back on a number of times – to determine the best settings perhaps
When he finished – Wow, my head was really throbbing as a result of his numerous “zaps”.
I left the exam room reeling like someone who had a close encounter with the electric chair
But eternally glad he can “fix” me with a tweak here and there and not even mess up my hair
What we can endure always amazes me and is somewhat comforting I must say
To know that our bodies and our minds are resilient enough to bounce back in a day.
I am lucky to live in a time when I can benefit from all of the miracles of modern medicine
Rather than living some time ago, well aware how difficult that would have been.
I ‘m just going to take life one day at a time, relishing every minute like it was my last
Cause it is true that as we grow older, the days seem to fly by, going way way too fast
I can barely finish reading the obits, just to make sure my name is not listed there
Before the day is over and gone, and I sit shaking my head and muttering “where”