Not sure myself why the change in treatment - though I didn't have the full debulking surgery (protocol here is that if they can't remove it all, they don't remove any) they DID remove the ovaries, partly because I complained at length about the psychological impact of the non-removal of something which chemo could never cure, but also to do a biopsy. The biopsy showed that the original chemo either wasn't working or wasn't working sufficiently; the oncologist in charge of chemo feels it is, but needed this adjustment. Weekly is apparently the "gold standard treatment" for someone in my situation. It is only carboplatin they have dropped; maybe that was the bit that wasn't pulling its weight. I haven't had a second CA-125 result yet to see whether chemo is actually doing any good or not, and as my general overall health is now actually very good - no pain, no major obvious chemo side-effects, I can't really tell from how I feel physically - I feel just fine! In some ways it is quite hard to believe I'm ill, as I feel SO much better than I did before my diagnosis when ascites from the undiagnosed cancer was quite literally killing me and shutting down my body functions.
Mine is stage III -something-or-other high grade serous carcinoma; begins on the fallopian tubes, genetically unstable; quite common, not a brilliant prognosis. Until now.
I am really glad to hear of your ongoing and increasing success. I am pleased for you and it gives me hope also.
I take it its Indica for the bedtime THC because Sativa would have me bouncing off the ceiling? After last night's sativa-based CBD I can go some way towards visualising that...
I have looked up the Maria Gordon site as you recommended and will revisit for firm advice after I know where I stand with this chemo - as that will be the base level for the next treatment. Meanwhile I am working on the THC aspect.
You know, this time last year, more ill than I knew, feeling bloated and lethargic, I would never have foreseen where this year finds me, or guessed that, being diagnosed with a serious disease I could suddenly find myself surrounded by friends and in a better place in terms of self determination, hope, future.
Thanks again, everyone.
what was the last ca125 result? and why didn't you do the second ca125 test?
after all the info you gave I would propose to contact Mara Gordon Team and give them your medical history and let them give you the dosage and treatment for you. IMO you should not lose precious time