Oldbear
Well-Known Member
I really can't comprehend the complexity of the journey you two are on. Best wishes for a great outcome.
Started out pretty good, but she's had a couple of sleepless nights in a row now. I sprinkled a little of the leftover flower onto her nighttime snack the past couple of nights, so I'm thinking that may have something to do with it. With a non-verbal child, it's all just a guessing game, so it's tough to know for sure. Another thing I can't seem to get my mind off of is the fact that cannabis can increase the levels of Onfi in her blood. We got bloodwork before we started her on the cannabis, and we just took her yesterday for some follow-up bloodwork to compare the levels of Onfi in her system. My hunch is that the Onfi is what's making her sleepless and a little irritable. Hopefully the doc compares the blookwork pretty quick, and we can start dialing down the Onfi a bit. I dream of the day we can get her seizures under control and at complete homeostasis using only natural cannabis and good nutrition, and we have her completely off ALL pharmaceuticals. Of course, to ween off of these meds can sometimes takes several months - which in and of itself should tell you how harmful these meds can be!