Our son who has epilepsy went to the clinic today!

Hi @77Camaro just wondering how things are going :)
Hi oldbear, sorry for my delay here I had some knee surgery so I have been recovering myself! I have been using the CBD oil coming from Aura. Although it is a little pricey I figured we will try it for 2 or 3 months to see if it makes any difference. If it does then maybe we can try the stuff I make and see what happens.

I know my stuff has been helping me with pain relief.

Camaro
 
Hi Camaro appreciate the update. Hope all goes well for your son and your knee.

fyi there is a thread on here somewhere about making topicals. Your existing product can be the base for that. Lots of good reports about topicals helping a lot more than expected.
 
Thanks! I have never thought about topicals but know you got me thinking!!!
 
Hi folks,

Sorry for the delay on an update...time of year...knee surgery... a puppy that wants all my time lol

So here are the highlights so far:

* He was increased to 3 full droppers a day but had to be reduced to 2 because of a diarrhea side effect issue. We assume after time he will go back up to 3 droppers daily

* Sleeping much better - This may seem like no big deal but it is. Often he would have really dark circles under his eyes because of not getting good REM sleep because of the "activity" happening in his brain.

* Instead of being aggressive and agitated now he is much happier and pleasant.

* Seizures - This is hard to judge at this point because there has never been any set precedent. Sometimes he would have lots of gran and petit mal seizures and sometimes none in a month. So it will take at least 6-12 months before we can say how it really is working for him. Since going on he has had 3 Gran and 12 petit mal. (what we have seen not sure what we miss during the night)

* No luck getting ODSP or Trillumto cover the monthly expenses.

So we are pleased so far that he has a better quality of life so far!

THANKS BIG TIME FOLKS!!!
 
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