Jacob Redmond
Well-Known Member
A Wichita mother is pleading with lawmakers to make an alternative treatment available.
Tracy Robles' six-year-old daughter Sofie has a rare form of epilepsy called Dravet Syndrome.
Robles wants medicinal hemp oil legalized for children suffering from seizures not only to take away her daughters pain, but to give her a voice again.
"It's heartbreaking because there's nothing you can do to stop it," said Robles.
Sofie often sleeps throughout the day after struggling through seizures all morning. Those seizures often make her scream and cry in terror. They started she was 18-months-old and are so debilitating she doesn't talk and can't chew food.
"It's very difficult watching her suffer and knowing that there's something that's helped a lot of patients in similar circumstances," Robles said.
The Robles' recently made a trip to Colorado to see if cannabis oil would help Sofie's condition.
"She was smiling," said Robles. "It was a huge difference."
Sofie's seizures decreased while she was on 'Charlotte's Webb,' a cannabis oil that cannot produce a high.
"When we came back and she started school again teachers said what did you do did you change her medicine because we're having so much better results in class," added Robles.
Now that they're back in Kansas, the first grader is once again suffering. They've been to Topeka several times, lobbying with lawmakers to allow children like Sofie to use medical cannabis oil.
The Robles' were pleased after a bill recently passed through the House that would allow seizure patients access to medical hemp oil with a THC content less than 3%, but high in CBD. The medicine would control seizures without the possibility of getting high.
The bill is now in a Senate committee, but Robles worries it will get pushed aside this late in the legislative session.
"I would like for them to put it for a vote in the Senate and for the lawmakers to do what we put them up there for," said Robles. "To help people."
KAKE News reached out to Kansas Senators on both sides of this bill. Those that got back to the reporter say they support this narrow form of medical marijuana after speaking with dozens of Kansans about its benefits.
Opponents have said they're against the bill because they're worried it would open the door to broader marijuana legalization.
News Moderator: Jacob Redmond 420 MAGAZINE ®
Full Article: Wichita mother pushing lawmakers to allow cannabis oil for seizure patients
Author: Ben Jordan
Contact: Contact Us
Photo Credit: None Found
Website: KAKE News | Wichita, Kansas | Breaking News | KAKEland | Weather | Sports
Tracy Robles' six-year-old daughter Sofie has a rare form of epilepsy called Dravet Syndrome.
Robles wants medicinal hemp oil legalized for children suffering from seizures not only to take away her daughters pain, but to give her a voice again.
"It's heartbreaking because there's nothing you can do to stop it," said Robles.
Sofie often sleeps throughout the day after struggling through seizures all morning. Those seizures often make her scream and cry in terror. They started she was 18-months-old and are so debilitating she doesn't talk and can't chew food.
"It's very difficult watching her suffer and knowing that there's something that's helped a lot of patients in similar circumstances," Robles said.
The Robles' recently made a trip to Colorado to see if cannabis oil would help Sofie's condition.
"She was smiling," said Robles. "It was a huge difference."
Sofie's seizures decreased while she was on 'Charlotte's Webb,' a cannabis oil that cannot produce a high.
"When we came back and she started school again teachers said what did you do did you change her medicine because we're having so much better results in class," added Robles.
Now that they're back in Kansas, the first grader is once again suffering. They've been to Topeka several times, lobbying with lawmakers to allow children like Sofie to use medical cannabis oil.
The Robles' were pleased after a bill recently passed through the House that would allow seizure patients access to medical hemp oil with a THC content less than 3%, but high in CBD. The medicine would control seizures without the possibility of getting high.
The bill is now in a Senate committee, but Robles worries it will get pushed aside this late in the legislative session.
"I would like for them to put it for a vote in the Senate and for the lawmakers to do what we put them up there for," said Robles. "To help people."
KAKE News reached out to Kansas Senators on both sides of this bill. Those that got back to the reporter say they support this narrow form of medical marijuana after speaking with dozens of Kansans about its benefits.
Opponents have said they're against the bill because they're worried it would open the door to broader marijuana legalization.
News Moderator: Jacob Redmond 420 MAGAZINE ®
Full Article: Wichita mother pushing lawmakers to allow cannabis oil for seizure patients
Author: Ben Jordan
Contact: Contact Us
Photo Credit: None Found
Website: KAKE News | Wichita, Kansas | Breaking News | KAKEland | Weather | Sports
